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SPASMODIC DYSPHONIA: VOICE 508
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SPASMODIC DYSPHONIA

A unique and individualized disorder. It affects people in different ways both physically and emotionally. Support is a critical piece to understanding and dealing with SD. The NSDA offers a range of support options to fit the needs of affected individuals and their families.

(SD), a focal form of dystonia, is a neurological voice disorder that involves involuntary "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

 

The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and sponsor support groups for patients and their families.

Support groups, both on-line and in-person, give help and hope. They can provide companionship, offer valuable adaptive strategies, and lessen the loneliness and isolation that may play role a in chronic disorders. Support groups also provide people a chance to give of themselves, and, when doing so, help others and themselves.

Printed material and videos help to better understand what SD is and assist in educating family, friends, and others, while symposiums provide a chance meet with others affected by SD and ask questions of the leading medical professionals in the field.

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Last updated: 06/09/05.